Activities september 2013

Discussion and education groups in the RemoDem project

The main purpose of the RemoDem project is to develop and test services for people with dementia so they can stay living in their homes as long as possible. When a person gets dementia, it affects the whole family.

Many of the participants in the project and their families express that the disease causes severe isolation and that they feel very alone in caring for their sick spouse, mother or father.

In September 2013, we invited everyone who had originally turned to the RemoDem project to an information meeting where a dementia coordinator informed them about the discussion and education groups which we want to establish as part of the RemoDem project in the Faroe Islands.

Faroe Information Meeting

Information meeting on 18 September 2013

The interest was far greater than we expected, about 70 people came to the meeting and about 30 joined the groups.

The purpose of the groups is:

  1. to create a platform for the participants where they can share experiences with each other.
  2. to provide professional support, guidance and education.
  3. to challenge the stigma attached to dementia.

There are 3 different groups established for:

  • People with dementia (MmD).
  • Spouses of people with dementia.
  • Children and other relatives of people with dementia.

Each group is led by two dementia coordinators. The groups meet about once a month. A total of 8 to 10 meetings are planned while the project is running.

All groups have met once or twice.

The groups for people with dementia and those for spouses have been divided by gender, so they are now women's and men's groups. 

In the group for people with dementia, it turned out that the men quickly got together and talked about old times, when they fished off of Iceland, etc. The women with dementia couldn't join in the conversation and therefore didn't feel like part of the group, so it was therefore divided by gender.

The group for spouses was the same, men and women voluntarily grouped themselves according to gender. After the groups were divided into women's and men's groups, they became more open and it was easier for them to tell their story of living with a spouse who is suffering from dementia.

In the group of children and other dependents, there has been no need for gender segregation, the participants join according to the times the groups meet.

We think this is interesting, but have no explanation as to why this is the case, perhaps age is an explanation.

Another difference is that people with dementia and spouses are more emotionally affected by the situation they are in and are most interested in discussing the challenges they face in daily life. Conversely, the group of children and other dependents are more interested in practical education about the disease, about communication, legal security, etc.

Faroe Spouse Meeting

Group meetings for male spouses

Published: 14/03/2014

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