General description

The RemoDem project is transnational and involves partners in Scotland, Sweden, Norway, Faroe Islands, and Greenland. All these countries have remote areas where people frequently have more difficulties accessing specialist health and care services than those living in towns and cities.

Travelling long distances to urban locations where services or professionals are normally based can be stressful, time-consuming, and expensive. This is particularly true for people with dementia, who need to access qualified professionals for dementia-specific services at all levels of the support system, from receiving reliable early diagnoses to accessing direct support for themselves and their families in their homes to consultations with relevant health professionals.

To further compound the difficulties faced by people with dementia, in some regions community-based dementia care ommunity based dementia care is a new and unfamiliar concept and systems need to be developed further.

All the involved regions have similar needs to enhance dementia specific knowledge at local levels through community awareness initiatives, to provide consultative support, and to provide safety and security for people with dementia and their families.

All see the importance of involving young people in the support of people with dementia as population changes mean higher numbers of older people and fewer young people, but this requires young people to see dementia support as a viable and valid career path. This is particularly true in remote areas where young people often move to towns and cities in search of better employment opportunities.  

Meeting the challenge

In order to meet these challenges, the Remodem project will develop and test an integrated service package for people with dementia living in remote rural communities, which allows and supports them to continue living in their current homes and postpones their placement in institutional care.

This will be achieved through modules of support incorporating tested ICT services, off-the-shelf ICT solutions and developed mature and tested technologies across all modules of support.

The modules will give people with dementia improved access to qualified dementia-specific community support and enable more cost-efficient care. The modules will respond both to the direct support needs of people with dementia and the needs of others who support them among family and friends, health and care professionals, and care providers.

Examples of modules

  • Module for direct support of the person with dementia. This might include activity supports such as navigation aids and wayfinding devices, communication aids, such as picture dialling and video-calling, and memory supports such as reminiscence aids and reminder services.
  • Module for support of family and other informal carers. Services in this module could include, for example, specialist help-lines for family members managed by dementia teams, community supported respite services and peer support services such as web-based networking with other families supporting a person with dementia.
  • Module for support to professionals. This module might include dementia-specific educational resources for generalist health and care professionals and videoconferencing services to allow access to remote consultations with specialist dementia teams.
  • Modules to support community members. Services in this module could include, for example, specially tailored programmes to engage young people in dementia support as a professional career.
  • Modules for information exchange between organisations: This might include web-based local, national and transnational networks for knowledge exchange about best practices in community-based support for people with dementia.
  • Modules for community awareness. Services in this module would inform and educate communities about dementia generally and about community-based support, for example through public seminars, public websites.
  • Module for service integration. This module would focus on ways of tailoring the service package to the individual needs of people with dementia, or of families who support people with dementia, or to the cultural contexts of different regions through the selection of modules and solutions that together produce an integrated service.

The support tool

RemoDem is a decision support tool for use in planning the provision of dementia-related services in remote rural areas. It provides access to technical data and to information on the available evidence on acceptability and efficacy of deployment of different technologies.

Dementia-related services include:

  • the direct support of people with dementia
  • services for informal supporters
  • professional support services
  • services aimed at communities and community members

RemoDem will provide structured access to both summarised and detailed information. The RemoDem tool presents information in ‘modules’ which focus on different areas of service provision. Each module user will be able to browse ‘solution concepts’ for identified needs and access data on specific technologies delivering each solution concept.

The RemoDem tool does not make decisions;  it is a tool to aid decision-making which draws on published literature and transnational learning to help inform decisions by summarising the evidence base and detailing technical requirements for implementation of tried and tested potential solutions.

RemoDem will be able to support organisations in planning the implementation of national and local dementia strategies. RemoDem modules are arranged so that users can access information on different areas of service provision in line with local priorities.

The RemoDem tool will also allow users to browse available data by ‘solution concept’. In this way decision-makers will be able to access evidence of acceptance and efficacy of the solution concept and existing technologies delivering that solution which will assist them in evaluating new product offerings.  

The project started on  October 1, 2012 and will end in  September 2014.

RemoDem decision support tool

RemoDem is a decision support tool for use in planning the provision of dementia-related services in remote rural areas. It provides access to technical data and to information on the available evidence on acceptability and efficacy of deployment of different technologies. Dementia-related services include: the direct support of people with dementia, services for informal supporters, professional support services, and services aimed at communities and community members. 

RemoDem will provide structured access to both summarised and detailed information. The RemoDem tool presents information in ‘modules’ which focus on different areas of service provision. Within each module, users will be able to browse ‘solution concepts’ for identified needs and access data on specific technologies delivering each solution concept. The RemoDem tool does not make decisions – it is a tool to aid decision-making which draws on published literature and transnational learning to help inform decisions by summarising the evidence base and detailing technical requirements for implementation of tried and tested potential solutions.

RemoDem will be able to support organisations [TS1] in planning the implementation of national and local dementia strategies. RemoDem modules are arranged so that users can access information on different areas of service provision in line with local priorities. 

The RemoDem tool will also allow users to browse available data by ‘solution concept’. In this way decision-makers will be able to access evidence of acceptance and efficacy of the solution concept and existing technologies delivering that solution which will assist them in evaluating new product offerings.  

The project is divided into three phases 

Analysis phase month 1-7: The project will begin with an analysis phase during which the core template of an integrated care service will be developed and refined. It will be based firmly on the national guidelines for dementia care in each country, state-of-the-art evidence based knowledge of dementia and the experience of care providers. It will also include and review existing ICT-based solutions on the market and from previous projects that have the potential to be adapted, complemented and developed for use in the project. This phase will include a participatory process that will involve representatives of main dementia care stakeholders in the targeted geographical areas of the project, including representatives of the care receivers and their families. This phase will result in a core template for care services, and agreement on how this template will be adjusted to the different local contexts. It also includes a health economic model and evaluation strategy to be used in the following phase.

Piloting phase month 8-20: In this phase a field trial of the developed integrated service will be prepared and carried through, followed by an evaluation how the it satisfied pre-defined success criteria. The main idea is that the core template with adjustments to local contexts will be implemented and tested by the care provider organizations in the Norrbotten county in Sweden, the Shetland Isles and Western Isles of Scotland, the Faroe Islands and Greenland. The adapted care services will have enough common structures and features so that experiences drawn in one region are comparable to experiences made in the other regions.

Deployment phase month 21-26: In this phase there will be preparations for deployment of the developed and tested integrated care service for people with dementia to the care organizations of the the Shetland Isles, Western Isles and Faroe Islands. Deployment will be conditional on the piloting phase having demonstrated human, social and economic effects beyond pre-defined thresholds. In addition, this phase also includes the dissemination of the experiences from the implementation phase to involved countries and beyond.

The project will improve care of people with dementia in remote areas through developing a template of care that takes into account the state-of-the-art techniques in dementia care and the particular challenges in rural areas. Our vision is that the developed care template will significantly improve the quality of life for people with dementia and their families.

The project will use state-of-the-art knowledge on how to support people with dementia, supporting local resources and utilizing more mainstream ICT based services in the targeted regions. The templates of care and concepts of services will correspond with national guidelines for dementia care in each country. The strategic intervention will be based on the principles of continuously utilizing evidence-based knowledge on best practice in dementia care, including the need for care to be highly adaptable to personal needs, responsive to change over time, distance-spanning, including multi-profession support and the use of cost-effective mainstream ICT solutions.

Key approaches to developing the template of care are:

  • Building upon available local experiences and resources, for example neighbours, friends, organisations and local care.
  • Distance-spanning multi-profession support to the local environment.
  • Use of mainstream ICT-based services when suitable.
  • Market studies for inventory of existing solutions and commercial potential for integrated concepts.
  • Develop and evaluate with real users a sustainable concept for integrated solutions and care of people with dementia

Important areas for ICT-based solutions are:

  • Personalized support for people with dementia in the areas of maintaining social contact, meaningful occupation and safe mobility, taking into account that people may have other impairments which make movement difficult
  • Support for family carers in the areas of training, supervision, psychosocial support and respite services.
  • Support for professional carers in the areas of training and working in demanding care situations.

The innovativeness of these services is that they integrate proven functionalities in a single all-embracing template of care with remote support for people with dementia and their family members.


 [TS1]see 33

Published: 22/02/2013

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